Just Yapping
Posted 04-10-2009 at 05:28 AM by MsVickie
Ok im a little over 18 momths out and still losing weight. Slowly but im still going. Im not in the head game thing anylonger I dont think with this surgery. I say that but who knows. I have had seizures since November still dont know the exact cause yet. They dont think its surgery related. That is a postive note for now. I was readin a post by my dear friend Kenya and she was talking about constipation like most of us do from time to time. This is the one thing about this surgery that is common and totally annoying. It gets to a point it simply hurts.
I do agree with what she said about her seizure episode or what she thought may have been one. She stated she thought she was constipated and took laxitaves to relieve her self. Mabye it was a colon cleanse any ways that is when she had trouble.
Thinking back.... I had taken some Senokot tablet which is a all vegtable laxitive the night before my seizures started. At this point when your so backed up per say you will try about anything to help you go so it dont hurt. if you get to this point you know what I mean.
This is somthing that needs to be looked into harder buy reseachers and surgeons and find a good laxitive or somthing to help us deal with bouts of constipation. We have Miralax to help alot but there are times it dont work or we have used it so much it dont work right. You would think our diets would make us go easier but it dont.
What a blog huh talking about POOP! LOL. But its a symptom most of us deal with afterwards.
So as Doc stated we are rewired of sorts and we are not like others when it comes to this issue. i will continue to use my Glycerin for now because it does work and dont go through my tummy. Just remember the gloves and soap afterwards.
My job is great. Im not working more than 3 days a week right now. I just cant do it. The stress of being a nurse is more stressful afterwards. i mean you can certinaly do more than before but I think sometimes we try to do to much. I just feel like my legs are 5 feet in front of my body some days.
Im in Pediatrics now which is always somthing I wanted to do. i dont like giving the babies shots however its part of the job and I know its for there own good to have them. Little faces smiling at you and bam they start crying. Even the smallest will look at you afterwards like what did I do to you to make you hurt me. Sigh...... LOL. I do love those looks though and the younger ones amaze me how they kinda figure it out.
I opened the door yesterday and called a little one back and in the back ground you could hear a baby screaming from having shots........ and this 3 year old looked at me and said...... What are you gonna do to me? he had the whole waiting room laughing. I got down on his level to him and told him that baby wanst in my room and I wasnt gonna hurt him. I was just gonna put him in a room so the Dr could see why he felt bad. He was ok with that.
Kids are funny and so smart. Simply amazing acutally. When i call there name they look at me take a step foward and then stop. I always then look at them and say Hi im Vickie..... how are you. They will always then come on toward me. Its a sence of its gonna be ok with them. I have been nominated sevreal times for nurse of the month and yet to win it. I think it was because I was a floater for a while but now im in Peds all the time Im getting close. The patients or in my case the patients parent are the ones nominating if they so desire. This makes me feel like im doing somthing right.
I will say I had a bad day yesterday however. i come into work worn out. Why? I had to cover a nurse whos main nurse quit a month ago. The NA they have helping her is plain and simply sorry. She dont like to do nothing but sit in her chair all day. So that leaves me to get the patients draw shots anwser the phone etc....... and If i have a seizure now its on a Thursday morning after i have worked with this lady. Im exhausted. Anyways yesterday am I come in wore complety out. My Dr i work with asked me first if I was ok. I said yes Im just tired. Shes the one that has a Neurologist friend she had contacted to help her watch for signs with my seizures. Well like a knife through my heart she said.... Vickie today I want to you answer the phones and get back the sick Kids. Terri will give shots ok? Well I took it complety wrong thinking she didnt trust me into giving shots that day. She was right. I was so worn down i shouldt have been giving them. Its so important to get the mix right and make sure its documented correctly. I got emotional for a bit but calmed my self down and thought it over. She come to me at lunch bless her heart and said honey I didnt mean to hurt your feelings. You just looked bad and Terri needs to help you more. I then told her I knew what she meant and took it wrong and from now on if she tells me that I would understand why. +
See I cant have my cake and eat it to I suppose. LOL. I need to be wanted and needed at work. So i took it all wrong when she first said it. She then told me she did that for my own sake because she didnt wanna see me go into another seizure on the job. She was right.
Sigh ..... the emotional feelings are comming through on my home life right now. The stress of my hubbys new Dx of diabetes the dog that got injured the GF moving in with me this weekend. Shes a blessing but sometimes I wonder if Brian really wants her here all the time with no break. That is a big concern I do have. Hes like his mom and needs space sometimes. She dont like to give him much. So my plan there is to just...... once a month at least do a girls afternoon away shopping etc...... until about 8. that should free him up to go hunting or down on the farm and watch it grow and tend it.
I got a new lawn mower....... I love this thing. Its a riding mower that is cruise control. New top of the line thing and I love mowing the yard. Yes strange huh. Its like it relaxes me like a alcholic with there drink. I had to get on it yesterday to help me get over my self after work. It worked to.
What a strange blog for me. Its early in the am I cant sleep so im typing away. This keeps the other posters post down from me and telling them an entire story when I dont have to. So this is another novel that someone didnt hvae to read unless they wanted to.
I do agree with what she said about her seizure episode or what she thought may have been one. She stated she thought she was constipated and took laxitaves to relieve her self. Mabye it was a colon cleanse any ways that is when she had trouble.
Thinking back.... I had taken some Senokot tablet which is a all vegtable laxitive the night before my seizures started. At this point when your so backed up per say you will try about anything to help you go so it dont hurt. if you get to this point you know what I mean.
This is somthing that needs to be looked into harder buy reseachers and surgeons and find a good laxitive or somthing to help us deal with bouts of constipation. We have Miralax to help alot but there are times it dont work or we have used it so much it dont work right. You would think our diets would make us go easier but it dont.
What a blog huh talking about POOP! LOL. But its a symptom most of us deal with afterwards.
So as Doc stated we are rewired of sorts and we are not like others when it comes to this issue. i will continue to use my Glycerin for now because it does work and dont go through my tummy. Just remember the gloves and soap afterwards.
My job is great. Im not working more than 3 days a week right now. I just cant do it. The stress of being a nurse is more stressful afterwards. i mean you can certinaly do more than before but I think sometimes we try to do to much. I just feel like my legs are 5 feet in front of my body some days.
Im in Pediatrics now which is always somthing I wanted to do. i dont like giving the babies shots however its part of the job and I know its for there own good to have them. Little faces smiling at you and bam they start crying. Even the smallest will look at you afterwards like what did I do to you to make you hurt me. Sigh...... LOL. I do love those looks though and the younger ones amaze me how they kinda figure it out.
I opened the door yesterday and called a little one back and in the back ground you could hear a baby screaming from having shots........ and this 3 year old looked at me and said...... What are you gonna do to me? he had the whole waiting room laughing. I got down on his level to him and told him that baby wanst in my room and I wasnt gonna hurt him. I was just gonna put him in a room so the Dr could see why he felt bad. He was ok with that.
Kids are funny and so smart. Simply amazing acutally. When i call there name they look at me take a step foward and then stop. I always then look at them and say Hi im Vickie..... how are you. They will always then come on toward me. Its a sence of its gonna be ok with them. I have been nominated sevreal times for nurse of the month and yet to win it. I think it was because I was a floater for a while but now im in Peds all the time Im getting close. The patients or in my case the patients parent are the ones nominating if they so desire. This makes me feel like im doing somthing right.
I will say I had a bad day yesterday however. i come into work worn out. Why? I had to cover a nurse whos main nurse quit a month ago. The NA they have helping her is plain and simply sorry. She dont like to do nothing but sit in her chair all day. So that leaves me to get the patients draw shots anwser the phone etc....... and If i have a seizure now its on a Thursday morning after i have worked with this lady. Im exhausted. Anyways yesterday am I come in wore complety out. My Dr i work with asked me first if I was ok. I said yes Im just tired. Shes the one that has a Neurologist friend she had contacted to help her watch for signs with my seizures. Well like a knife through my heart she said.... Vickie today I want to you answer the phones and get back the sick Kids. Terri will give shots ok? Well I took it complety wrong thinking she didnt trust me into giving shots that day. She was right. I was so worn down i shouldt have been giving them. Its so important to get the mix right and make sure its documented correctly. I got emotional for a bit but calmed my self down and thought it over. She come to me at lunch bless her heart and said honey I didnt mean to hurt your feelings. You just looked bad and Terri needs to help you more. I then told her I knew what she meant and took it wrong and from now on if she tells me that I would understand why. +
See I cant have my cake and eat it to I suppose. LOL. I need to be wanted and needed at work. So i took it all wrong when she first said it. She then told me she did that for my own sake because she didnt wanna see me go into another seizure on the job. She was right.
Sigh ..... the emotional feelings are comming through on my home life right now. The stress of my hubbys new Dx of diabetes the dog that got injured the GF moving in with me this weekend. Shes a blessing but sometimes I wonder if Brian really wants her here all the time with no break. That is a big concern I do have. Hes like his mom and needs space sometimes. She dont like to give him much. So my plan there is to just...... once a month at least do a girls afternoon away shopping etc...... until about 8. that should free him up to go hunting or down on the farm and watch it grow and tend it.
I got a new lawn mower....... I love this thing. Its a riding mower that is cruise control. New top of the line thing and I love mowing the yard. Yes strange huh. Its like it relaxes me like a alcholic with there drink. I had to get on it yesterday to help me get over my self after work. It worked to.
What a strange blog for me. Its early in the am I cant sleep so im typing away. This keeps the other posters post down from me and telling them an entire story when I dont have to. So this is another novel that someone didnt hvae to read unless they wanted to.
Total Comments 18
Comments
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Its easter sunday. I love this day for the meaning and the fuss that goes into it. I remember as a child my mom getting me up so early not for the easter bunny but to do my hair. Oh man I hated that part. The year I will never forget is the year she didnt have my aunt do it the night before. We are talking behive days here. The late 60s early 70s. She got up that am and washed my hair and to dry it in curlers get this.....she used a vacum cleaner hose with it on the blow mode. I think some of you know what I mean about that. I was ok it was cool air which meant it didnt dry fast but when my oldest brother got up he had a great time with that. I cryed so bad my mom smacked me for it. My dad...... for once in his life said ok this is enough. Her hair is fine long and straight........and your not gonna do this to her no more with a vacum cleaner and have her harrased by her brother and then you punish her buy smacking her for it. I never had to have my hair done after that. My dad liked long hair anyways without curls .
Im gonna spend the day enjoying my hubby and my son. His GF has not made it in as of yet and it looks like its gonna be monday or tues.Posted 04-12-2009 at 10:47 AM by MsVickie
- I had a good week in all. I seen the Endiocrionoligst for the putitary gland tumor and he stated it had not grew any from the recent MRI I had. Its a good thing. I have to go on VitD 3 now as a supplement. Grrr. I try to get most of my vitamins though my foods but I do forget They dont stay with me like before so I cant (soak) them up like I used to before surgery. Kinda Annoying acutally. Let me explain that one. I was on like 14 pills a day before surgery and granted none of them were supplements. I come home with just 3. Now im back up to 9 differnt ones. These are different meds however and I am including my Vitamins and supplements with this. At least there not for High Blood pressure Diabetes etc. I traded those off for pain meds and headache pills and seizure meds along with Vitamins and supplements LOL. If it wasnt for the insurance my hubby has there is no way in the world I could afford these meds along with the Vitamins I take. Im very blessed in that way.
I took care of myself this week like I was supposed to because im a seizure patient. Actually I felt much better. I suppose spending so much time doting on myself makes me feel bad but in reality its somthing Im gonna have to do for myself in the long run.
My sons GF still has not made it in yet because of car issues.......long story on that one but she is supposed to make it in today. Shes a sweetie and I hope the visit/ stay goes very well.Posted 04-18-2009 at 07:30 AM by MsVickie - Ahh........ another week done no Seixures. Thank goodness. If I had to sum that up for people mabye?????? Its like when your cycle is off and you have no idea when to expect it and you prepare for it all the time..... and wham out of the blue it hits ya? Well not a great comparison but the closest I can get to make some understanding out of it.
I dont dream alot or not that I remember anyways. However I had a dream Friday night I was having seziures again...... go figure. I suppose after having the Drs appoitment that day it set on my mind.
I spent the day yesterday shopping for out doors things we have been wanting and needing. The place is really looking good. My hubby has this thing now for the solar lights. It looks great but the dog likes them to....... nothing like looking outside in the dark and seeing a light moving around......in the dogs mouth LOL.
The hubbys diabetes is undercontol. Between the meds the Dr put him on and the diet...which wasnt that much of a change for him but watching the acutal sugar he eat........its doing very well. Hes still having a fit with the testing strips. Its nothing to come in and find several strips hes tried to use to get one reading. Hes trying though, he will acutally do this now instead of waiting on me to help him. Its important for him to do this on his own and know how. Its our own personal responsibltiy to take care of ourselfs. Yes its great to have help, but certian things you have to do on your own.Posted 04-19-2009 at 08:50 AM by MsVickie - Another decent week. No problems with work. I have decided I cant do it all myself like I used to have to at my old job. Im letting people help....... which im supposed to do. LOL. Gessh..
I done this myself.... to see if it helped me any during the week with my tiredness and it did. My blood pressure is still so low. I think that is another reason I sleep alot on my days off. I know I need the rest and have been told to get it.....but geesh.....its a bit to much acutally I think.
I had the EGD this week and he told me my ulcer is almost completly healed up. I done as he asked me to do to the letter and it helped. I will continue this for a while to get it totally healed up then mabye throw in a bit of a salad once a month. I do miss them. I think im the only person that hollars about not getting enough fiber because im told not to eat any because it will make me very sick.
Had a good weekend. Went to Columbia SC with the hubby to a Racer Reunion. He loves to go to these things. This is the largest one I have attended. Old driver even ones I knew were there. HA! I usually go to the ones....that I have no idea who they were. They are the ones that made racing what it is today. They will tell you they started NASCAR. Its true. Alot of these older drivers were before my time but I love to set back and listen to them talk. Its like listening to a grandparent talk about how things were for them back when.
I have realized this week that Im not getting in enough fluid. What made me realize this........is after the EGD they told me the one med they give you to relieve anxiety before they acutally put you to sleep will make you even more thirsty and make sure I drink plenty. So the hubby stops and gets a new case of bottled water. Im not a big fan of bottled water..... because we have 3 filters on our water here at home and its spending money we dont have to needless to say using all that plastic. Well...... hes recyclying now so im not as upset about the usage now like I was. Anyways...... to get to my point.... I drank 4 bottles of this chilled down water from the fridge and loved it. I looked at the ounces and thought...... OMG i havnt been drinking enough fluids for a long long time. You see what i got out of that water was what we need to drink daily after this surgery. I see now Im not consuming enough like i should. It took those bottles I dislike so much to show me that.
Plastic is used in alot of stuff right now. We have to take our own trash to bins down the road a few miles to throw it away. The plastic really jams up the trash bags and makes you use alot of them. When he told me lets start off easy and do the newspapers and plastic containers.... and see what happens I was thrilled. WOW on the cut down of trash bags used. We have a container we bought 3 years ago to place the plastic bottles in. We have a bag with handles on it for the newspapers to keep them tidy in the house until they are emptyed. What a differnce just these two things make. The next thing after we are fully trained for the bottles and the newspapers are gonna be cardboard boxes. Taking it a step at a time much like this surgery is working well. Im not a hippie or tree hugger but after watching some programs on the TV it makes you think about what we are doing to the planet. Im in the generation that remembers the crying indian years ago in commericals about pollution. To bad it takes so many years like it did me to wake up and take notice.Posted 04-26-2009 at 09:22 PM by MsVickie - Another decent week in all. I did have a severe migraine yesterday in the am which set off a Seizure. This was about 10 minutes after i woke up. i get up earlier now just in case i have one to see if its bad enough to stay home with. Work has advised me to stay home after them for my own benefit and theres. Thank goodness. I slept all day long again. My sons GF yesterday asked all day long if I was home and why I was sleeping alot. My son told her I do this alot when I have a day off. He dont realize it wasnt my day off nor did i remind him. He gets worried about me to easy and it worries him to death. Unless its somthing major.....we dont lie to him but dont tell him eveything. I do this with my brothers also. Its just more stress in there already stressed lives to begin with.
Brian got a job at Lowes here. Starting him out with a good salary. Brandy his GF got one the same day with a nutrition place flying a desk all day. Im proud of them both. When he moved to GA at the beginning of the year he applied everywhere down there for a job. There wasnt any to be had. He come home and landed one fast. He worked a construction job for years before. Even his boss called me after Brian left and told me if Brian come home to send him over to him and he would take him back. It seems Brian has a great skill at building stuff. He acutally got another call for a job the same day he got the one he has. He said it made him feel needed. He however didnt want to go back to his previous job because he found out the fella was starting new people at the same salary as he had been making for 5 years. He didnt feel respected on that part and he was right. Brandy was shocked she is making the salary she is. She was hoping to make 7 dollars a hour to start and is starting off at 10. That might now seem like alot to alot of people but to her its massive. I think its massive myself. Right now anyone getting a job is very lucky.
They are working on there relationship everyday. Both have some anger issues and being here with us to help them out had helped both emensley. Mike speaks with Brian about this and I seem to help Brandy more. Men and women I suppose seeing both sides to things. Its funny what people fight over sometimes acutally.
My son always liked Mike but seems to have bonded with him alot since he come home. He respects him more now than ever. He said it took him not being home for a few months to realize that.
Its like the old saying which is very true.... as kids age their parents get dumber. However when they hit a certian age after there 20 or so their parents get a little smarter again each year. I think we much have really gotten smarter over the last 4 months. LOL.
I want to see them both flourish. They will. He told me he used to get so mad because his friends always had things given to them by there parents and i wasnt able to give to him like they did. I didnt have the money to do so. He said he got so mad over that also me not having money ven after working 2 jobs all the time. I was a single mom for 20 years with no help but with my own hands supporting us. He said it was late last year when he moved out on his own 2 miles down the road he couldnt barley suport himself making the same amount of money I did each week. Under the table was part of his money on fridays where the boss didnt have to pay overtime.
During this time I made sure when i bought grocerys i bought them like i did before he left and just would drop buy when he was home and make a delivery. He told me he would have starved if it wasnt for that. I knew this..... but never said nothing. He had his own washer and dryer but......I would ask honey is there anything you would like for me to wash for ya/ he would grumble a bit and say well if you have time? Of course i made time. I just put them in with things we had like I always did. I didnt however clean his house. I hate cleaning my own much less someone elses LOL. I kept him fed and clean. When bringing over stuff I would say oh i got this shampoo etc....buy one get one free so I though you might could use it..... he never turned that down either.
Now hes back in my home and his GF is here with us again.......he washes his clothes or she does. Loads the dishwasher does the outside work...... helps with anything he possibly can and has a talk with Mike each night about a hour long. Telling him about his day and men stuff. I love it. He never does that and said hes always wanted to. It helps relive any tension he has bulit up thoughout the day. Of course I get my own talking time but its not mens time like they have. Mike loves it because he has a man to speak with himself about races hunting etc.
I get girl time myself with Brandy. I grew up with 3 brothers and never had girl talk. With her I love it. I get more than a couple hours a month now which i always get with my best friend. I enjoy it. She seems to also. Ours is less mabye 30 mins a day but im sure that will increase as she becomes more used to us. It would have to be hard to live with a boyfriends parents whom you know but dont really know?
So far its been great and I do hope it last. I know its a sin for them to do that but Me and Mike did this before we got married to make sure it would work. Im glad I did. It was beneficial for us both.
So in all life is good. Stuggling at times like everyone else. My little brothers wife is having a hysterectomy today. Bless her heart she is 39 and was never able to have kids. He has 2 from a previous marriage and she will tell you GOD intended it that way for her to be a mom to those kids. The kids are the ones that told there daddy they wanted him to marry her. The kids were right. Shes great. A blesssing sent to them. Im very cautious with thise kids in particular. Im there second mom so to speak I have had to keep them alot. They love her like nothign I have ever seen and she does back.
When asked if she has kids she says yes I do! I have a daughter and son. She dont say step ever.
Ok enough of my book for the week.Posted 05-01-2009 at 08:47 AM by MsVickie - Its been a good week in all I suppose. I think I have lost a bit more weight even though I havent gotten on the scales. I was watching Pure Country and seen a video and song called Shutting Detroit down. Watching and listening to this brought back so many bad memorys from my childhood. You see my father made car parts for Chrysler about his whole life. He was a tool and dye maker and made Manifolds for all Chrysler products.
While the auto industry has suffered massivly and we dont look at the people it will impact we point fingers. These are our neighors losing jobs and homes. We stayed on edge evey 4 years or so to see if the union would accept a new contract and keep my dad working without stripping him from everything he worked for so many years. You do have to think back to when farmers had to lose land and farms years ago and the goverment didnt bail them out like they are banks now. I cryed watching this video. I have been a victim twice now due to factory closings. Work sent overseas and left with nothing to live on. Raising a child on my own. I finally got a chance to go to school and become a nurse. The best thing I ever did for me. Ok enough of that. Talking about all this and seeing that mad me so sad.
The joints are aching today and have pretty much all week due to the storm systems moving though our area. A real weather man needs my arthritis. LOL. He would be dead on. I pray for rain when a system moves in because as soon as it starts the pain goes away. Not this week. So many are following each other through. Its contant almost.Posted 05-08-2009 at 09:34 AM by MsVickie - We have had two tornadoes touch down in countie so far this week. We are in the mountians for goodness sake. Its the new tornado alley. We are talking about 5 inches of nothing but hail etc. Its all been far enough away from me but to close in the same regard. I have been in what they call 2 micro burst. Once in NC and one here in the Town of Floyd. Both scared me to death. I cant stand lightening any more. I used to love a good thunderstorm but after being in those situations in the past 5 years im litteraly scared. Today the arthritis is better. It takes its times when we are expecting storms. I call tell you if we are gonna get rain etc, buy the joints. In me mentioning the weather man in a post before Im very serious. I have seen them say clear and sunny all day and im saying no....... we are gonna have a storm come in fast because im hurting. Im always dead on with this. I would just assume not have it and and not know.
Arthritis is a new thing im gonna reseach and find a group to join. I have done eveything I can possible to help myself with injections surgerys on joints etc......and im still in pain. I know my knees are not gonna make it until im 60 like they want them to for knee replacement nor am I ready for that surgery.
The heat will bother them to in the summer. Sometimes more than the winter. I suppose I can warm up the joint in the winter better than trying to contol them in the summer.
I see a pain management Dr for this pain and the meds in a patch do help but I have to be able to work also and not be on meds that interfe with that. He already told me it was best not to let my coworkers know that I see him and what meds I do take. They will draw conclusions without knowing the entire story behind it. My supervior however does know and fully understands this because she is a patient to a pain management Dr herself for other reasons.
I would suggest to any one fighting arthritis to look into seeing one. They will work until the pain is bearable and not interfere with day to day activites. Being a gastic bypass patient I had no other choice since we cant take aspriin. Sure I do have break though pain from time to time. I was told in the beginning it might happen. I grab my bottle of tylenol and wait for the rain. I hope you all have a good week.Posted 05-10-2009 at 07:47 AM by MsVickie - I had my EEG done this week. Its a Brain wave. For my seizures. I had to wear if for 24 hours to let it record my activiy in my brain. Its alot like the wired they hook you up to for a sleep study except there are none attached to your legs and you have 3 belts to wear and have to keep on for 24 hours. She told me she had people who had to wear them 3-4 days. I dont see how they do it. Its heavy gear after you have it on a while. you can take the packs off while you sleep but you cannot unhook anything meaning the wires. The type of glue they place on your head she told me is more or less superglue. So they dont come off. She used compressed air to make it dry quicker. When she took them off today she had to use Acetone. Imagine that. It took a while needless to say. She told me to come home and wet my hair put alot of conditioner on it and put a plastic cap on it for atleast a hour. Then wash my hair really good twice. It got it all out. The conditioner was to get ridd of any excess glue or to make it come on lose.
While questioning me yesterday about the seizures etc...... what brings them on...... she told me and the hubby they have had a sharp increase of Gastric Bypass patients having to be seen for seizures. I was stunnded. She said they cant put them together as of yet but they do think somthing is related. When I say a sharp increase I mean of course this surgery wasnt as common as it now 5 years ago. So she does contribute the rise to that. She also states is a very rare side effect if it is connected. When ever its a rare thing you can almost bet Im part of the rare incident LOL. Im almost not kidding.
If they can just get me surgery free and on meds its fine with me. Every time I have one it starts my 6 months over being seizure free so I may drive again. I can see people not paying any attention to that or cant......but I have to not do it because of the other people on the roads and I do have a husband that can drive me to work and back along with other things I feel I have to do.
So that was my week. Im just going along as normal and learned a few things along the way.Posted 05-15-2009 at 08:20 PM by MsVickie - I got a call yesterday telling me during my EEG that no seizures showed up. I knew that already I could tell. I slept most of the way through it. The Dr did want to see me the first week of June so I will be going back then.
I had a couple bad ones this week however. Stress is setting these off and not getting enough rest. I watched a show called the 1/2 ton kid. About two teens having to have surgery. It was actually odd in reference to watching the other shows about GBS. It showed what the parents delt with with them and how the kids were treated. You had one that was treated to well and the other not well enough. One young man was taken to the hosptial to have it done.....and a couple weeks later picked up when the mother had to come get him. No visitors inbetween what so ever.
You know as a nurse we are taught empthany. This is what you get when your sick go in the hosptial or Drs office and you tell the nurse about what is wrong with you and they dont stand and listen and cry with you or ask you alot of questions about things. This how we keep our sanity. Its understanding there pain without sympthany. Some nurses show it and its not long before they burn out. I have shown it myself but soon learn you just cant.
Well upon watching this show the other night how can you not have sympthany for at least one of these kids. The one that was DROPPed off and left somone elses problem for a couple weeks.
I was mentally abused by my mother for my weight even when I wasnt fat. She was overwieight her entire life. So she always said somthing about me weight to me. It would get my brothers going and it was hell to say the least. I could see that pain in this young mans eyes. I understood it without it being said.Posted 05-22-2009 at 06:08 AM by MsVickie - This pastweek was ok. I started with a severe headacheon monday and made it though work . I was off Tues and that is when the seizures started. They lasted until Saturday. Sigh...... Im gettin really tired of these. I go see my Neuro June 6th which is soon so hopefully he can give me some more ideas or somthing to get these under control. Its just dishearting is all. I have to miss work when Im having them also. That is not good considering im only working part time as it is.
Other wise im doing good. My pants are now falling off me again and no i havnt weighed for a couple weeks. Im probally staying steady at my wieght but losing inches . I did get a good compliment this weekend from my hubby out of the blue. He said honey compared to these women you got dam good looking legs. He means below the knee. LOL. Above the knee is hanging skinPosted 05-26-2009 at 07:46 PM by MsVickie - Bad day already. Last night before going to bed I was loading up my pill boxes for the week. My husband walked in and caught me in the middle of a seizure. I dont remember any of this. He took them away from me and had me lay down. I got up this am about 5 which is about a hour early feeling pretty well then slowly within 30 mins got to feeling bad again. Mike had gotten up early himself because of last night when he heard me moving around. He told me good am and proceeded to watch me without me knowing it. It seems I was shaking terribly while trying to iron my uniform. The here it come. He stated I was playing with my uniform with the iron. Picking at it and barely touching it. I knew when I started to iron this was my worst top to iron, however pretty it may be its so wrinkly. THe next thing I know im in the bed again. Needless to say when I comprehened again...... Mike told me about last night with the meds. He decided to take them away from me and hide them because he was afraid I would OD myself because I wasnt coherent . He pulled them out and showed me what I had started placing in the pill box. It was a mess. Im gettting a bit scared now. Im almost maxed out on Keppra. Im on 2000mg twice a day. I do ok for a bit while it builds in my systems even though it will make me dizzy for a while. Then when I think im doing good......wham. Its been over a week now that these started up again. I get less memory back each time it seems afterwards. Mike called my work himself today as I found out and told them I have been a mess for a week and hes taking me to see my PCP today at 11 30 to see if he has any ideas. My neuro appoitment isnt until next Friday and you hve to be half dead to get an appoitent with him if not already on the books. This way if nothing else Dr K can get a hold of him if necessary and get me in or ask him for advice if he dont know. My headaches are worse. Its more in the middle of my head now than before. This is kinda new. I dont know how much more they can test me actually. Im sure there are other ways I shouldnt saythat. Please lord help them find out what is going on.Posted 05-27-2009 at 10:31 AM by MsVickie
- Well I managed to get myself taken out of work until further notice and a new script for new meds to help with seizures. The taken outta work part bothers me alot. I love that job and im just a few days short of being there 1 full year. Im gonna survive this one way or another.Posted 05-27-2009 at 03:47 PM by MsVickie
- Ok seizure free since Wends I think. I was very dizzy this am and bumping into the walls but didnt seem like a normal seizure for me. I think it was the new med they added and a side effect from it. I know when I first started taking the Keppra it would make me very dizzy and bump into stuff. So im thinking that is mabye what it was.
I did see the pain management Dr today for my Synvisc injection into my knee. They have a new Synvisc now intstead of having them do one shot a week for three weeks this is just a one injection and your done for 6 months. This is a injection to keep me going until I cant go anymore then the knee replacement comes in. Since i have lost the weight my knee feels so much better. Its been almost a year since my last round of it. I did have to have a steroid injection in it a while back and fluid drawn off but other than that its been great. I still deal with arthritis pain. Some days are worse than others. You know its a shame we cant almost look into our lives and see what will happen to us if we dont take care of ourselfs. You know its just been recently I have listented to so many people telling me now they are at the age they are what problems they are having due to lifestyle. I have heard it for years but never realized what we acutally do to our bodys to harm us later. I know younger people now do not understand it unless they have lived or been close to somone and watched it happen. There has to be a better way to get that out.
I was watching the news last night about a mother mabye facing charges about her obese son. Hes 10? I dont know if i have that age right or not and weighs over 500 lbs. They are blaming her for his weight. Im sure she enabled him alot of ways but I think they should run test etc to see what is really up. You think of a child being that age...... really think about it. I will follow this story but I hope they show all of it not just the what we think side of things. There has to be somthing medically wrong with this child. You look at us and most of us have been though somthing in our lives we smothered ourselfs with food to feel better.
You see i have to much time on my hands right now so im blogging. LOL. Gessh. Ok im gonna stop for now.Posted 05-29-2009 at 05:52 PM by MsVickie - I have been doing ok. Just a couple of small seizures since last post. The new meds side effects seem to be a little less. The dizziness is the roughest part. Just some now compared to alot when first starting them. I see the neurologist tomorrow in hopes I will find out somthing new or somthing. He will have the final results to my 24 hr brain wave study. His nurse did call me about 3 weeks ago to tell me I didnt have a seizure while wearing the gear. Which I already knew. She did say he wanted to talk to me about it when he saw me.
So........ hopefully tomorrow I can have some new anwsers. The weight comming off is slow. Im happy with that. It comming off so fast at the beginning was hard. To fast I still think for me to keep up with. It wasnt like I was hit buy a truck but the truck backed over me. LOL. Im still very happy I did this. And yes I would do it again.Posted 06-04-2009 at 07:44 PM by MsVickie - I seen the Neurologist. He took me back off the med the family Dr precribed stating that is will eventually break down into a sedative and he didnt want me on it. I have to back off it slowly like I started taking it. He agreed im not to work until they get control of the seizures. He didnt remember either letting me go back to work? They really need to put this in there notes. He was like your working? I said yes part time he said well you need to be off until we get alot better control of things. He then decided to send me to UVA the University of Virgina to have the epilepsy clinic have a look at me.
I have really good days and some not so good. The good days are more than the bad thank goodness. This not driving for 6 months starts over everytime I have one. That is self is depressing. Im lucky to be working for the employer I do. So far so good. I went to file for short term disablity last week just incase I needed it and was told I didnt have a policy??? They take the money out of my check each time I get paid and im not covered. This took several days to straighten out. What had happened was that when I went part time according to them they didnt know how much to make my benefit and let it set there without lowering my rate.
I worked with this young man who was very patient with me and we understood each other when speaking to each other. He promised me a phone call by a certian date and he did call the day before saying he had no update as of yet but would call me the next day with the result because that was the deadline. He was true to his word. He helped get it back reinstated and told me what they had done. I didnt have a break in coverage which I was truley scared of. That would have meant this would not have been covered even though I had a claim with them prior to this for the same thing while I worked full time. I do hope I can overcome this soon.
I am covered however for 6 months if necessary with short term disability and then it switches to my long term policy to which im very thankful for having. Those few dollars each pay check and greatly help if its ever needed.
Now to figure out how to get my excerise in like I did working. I walked several miles per day at work with the type of work I did. Schools out here and there is a elementary school close by that has a track. I hope to go there daily to walk. Getting my hubby to go with me on a dialy basis is the hardest part. Its a getting used to thing for both of us. It will be good for the both of us.
Im getting outta my funk every day. Im trying to be postive about this. Im lucky to have Mike with me home everyday incase I have a episode and he can tend me if needed. Hes only had to help me a couple of times with them getting me to lay down or hold me up until I can sit down. I take all my meds like im supposed to. Im taking all my Vitamins like im supposed to. Every time I see a Dr they take blood. So in reality they shouldnt be missing anything. Between 4 of them they have me covered.
I do miss work and the kids I work with daily. The smiles the laughter and even the crying. Its like hearing life moving around you non stop. Its a good thing.
A couple of my neices and nephews live close and will be over I hope alot this summer. I have asked for them to come over and camp out or stay the night. There parents thinks this is a great idea. This gives them a break. These are the two that I used to keep alot along with my husband before my brother got married to his current wife. Im in hopes that will fill my void somewhat.Posted 06-07-2009 at 01:20 PM by MsVickie - Well I met my GOAL today! I have advoided the scale because i was getting so close and with me not working right now I didnt have a way to weigh so that was a blessing. Mike had his 6 month check with his Thyroid cancer Dr today to make sure things were still going well. I never miss that visit ever. I will let him go to all others by himself but that one. LOL.
I selected proper clothes today knowing what they would weigh. I wore the same shoes I wear to work when i worked beause i knew how much they weighed. Mmm yea I picked this out fit out one day after work and went in and weighed it without tags including the belt a pair of socks and my shoes along with a bra. I went in after hours while a Dr was seeing after hour patients to weigh it on purpose. The nurse just laughed at me when i did this. But she understood. This was gonna be my goal day wearing outfit and it worked ! LOL. I have not weighed naked in years so this is the way I chose to do it. We stopped by the same scale down in pediatrics on purpose. He weighed first to see if there was a difference in scales before going up stairs. Then i got on. 170.0 even. I stepped on and off 3 times to make sure it was right. No one seen us and I just smiled. Upon arriving to see his Dr he weighed and it was the exact amount as the Pediatric one. Then of course i tested It. The nurse is a good friend of mine anyways so she watched me. She screamed out she hit goal!!! LOL. She knew all along what my goal was. The nurse that works with her daughter had the the surgery a little over a year ago so she does understand alot.
I told her to just hush and not make a scene. LOL. No one heard her I dont think. Anyways upon the Dr comming in whom I have floated for come in and said hey Vickie..man you have lost alot of weight. I said yes.
Any ways to get back to Mike. They had did all the labs they needed to do on him including the one they check to see if any thyroid tissue was growin back to give a percentage of more than zero. Its has to stay a zero or it means thyroid tissue is growning back and thats bad. Mikes was Zero. Thank Goodness. He felt Mikes neck and felt nothing and said well I do a ultrasound once a year to make sure nothing is hiding in there i cant feel which im sure will be clean but its the time of year for it. So we will be doing that Wednesday.
As for my seizures...... i have had 2 already this week. Are they getting better no. The primary dr added a medication and I bulit up to what he advised. The neurologist told me to back down off it and stop taking it. It didnt make a difference anyways i really dont think. So Im dealing with these things as they come.
What is almost funny is my son will say MOM I can tell when you felt good today because your talking my ear off. LOL. When you dont feel good or had a seizure and I dont know you even had one your quiet. So he likes the talking better he said.
Im glad hes home. Im glad hes happy. Im even glad his GF is living with us because its a good thing. They do not bother us in any way.....keeps him straight per say and helps even when you dont ask. Shes always happy and I love to see people smile. Enough about all this.
I have had a hard time however with Jerry being gone especially today. If you read my post about him today you will see why. I do miss him so much even though hes in a much better place..... his kids and wife im sure are still suffering. He was a true friend indeed.Posted 06-12-2009 at 08:58 PM by MsVickie - Its been a odd weekend to say. Hot so i stayed in side. My joints hurting but no rain? They usually stop when it rains but not this weekend. I watched to much TV. LOL cryed alot. Emotional about alot of things. I had to much time on my hands and didnt keep busy. Hermit style as i call it.
Depression? probally. I slept alot to.
My weight is great. My health is good except for little things as posted above. Not so little when they happen but small in comparison as to what I have faced before.
Now I love men dont get me wrong, I have always been cautious of them. Why I have no idea. I suppose i expect them to act like my dad used to treat women and how my husband does. The one thing I would like to change about things right now...... and I cant....... is the comments some make. Trust me i can go without ever hearing them.
The race weekend hit hard on me with comments needless to say. Yes alot of drunks around and alot of men whom left wifes home and I can see why they dont like to come LOL.
I feel I dress appropiate and never showing much skin ever. I only took one pair of shorts with me on that trip on purpose. Hiding leg skin. I wore appropiate jeans. Not tight comforable. One tank top and you all seen the pic of that one. It was in no way revealing. Most of it was Tshirts.
Anyways..... I got felt up. Told that story in a post 20ish kid caught me with hands full standing waiting on the hubby to get a free sample and he felt my boobs and hollared. Gessh embarising. The kid caught reailty when a older man grabed him up buy his shirt collar for it.
I heard 3 times mind you the comment......
Man I would tap that A$$ in a heart beat. This come from all ages. Makes me cringe. This is as bad from years ago going past a construction site and getting yells beause they did nothing else but hollar. Yea even at me. Ha! LOL
Hugs from men down there because they were happy I suppose. This meaning the neighbors etc...... More than a hug its a feel. Yall ladies know what I mean.
Going to the gas station here and being watched buy a couple of 30 year olds usinig the tapping comment again. They do this in front of my hubby. When he hears them he says hey fellas that is my wife and show some dam respect.
I have heard him say this alot and not even hear the (boys) comments. I dont wanna know what they say.
There are times when we stop in a small station such as this that I ask him to go in buy him self just lock the door when he gets out and he already knows why.
Is this what normal women endure on a daily basis? I sure hope not. If so God help us all. If i ever seen my son do this or ever thought he did it I would slap him into next week. My husband surely didnt win my affection by actions such as this.
Im not beautiful by a long shot. A bit on the homley side I think. Its me. Mabye i should show them my well hidden stomach and thighs. I bet they wouldnt wanna tap that.
Im rambling. Its 5:12 am right now. Couldnt sleep and have been up a couple hours.Posted 06-15-2009 at 05:14 AM by MsVickie - Well today I went to see a Sleep Specialist. They had did another sleep study on me a couple months ago and as I knew already I didnt have sleep apena any longer. This was what he told me and asked how my sleeping habits were now. I dont sleep much and im worn out most of the day etc... I cant get to sleep but cant stay asleep. He has given me a new sleep med to try. Its a oldie he stated but seems to work better for people than the Ambien and Restoril they have tried me on before that the pain management dr placed me on. We both hope this helps.
Since the sleep study didnt show anything strange he has asked that I see a Physcothearpist to see if any type of stress etc is causing this. I readily agreeded to this. I know alot of times I dream of my old job I had back when I had my surgery and the ultimate dislike of the physcian I worked for. Among other things. Its like nightmares in a way. So... Im gonna do this. The Dr thinks this fellow can help me with my sleep issues. Im gonna ask if he can so some hypnosis to help stop smoking. I did tell him about my seizures and hes a bit stumped himself. He practiced neurology for a long time. He agreed with them sending me to UVA the to the Eplilpsy Clinic. So since Nov I have the following Drs following me now.
PCP
Pain Management Dr
Neurologist
Endriocringlogist
Gastro Dr
Physcothearpist
Sleep Disorder Physican
Eye Specialist.
I mean how much more can a person endure I mean really. If it wasnt for great health insurance what in the world would I do. Im hoping that mabye just mabye if they can get this sleep thing worked on and it helping the seizures will stop.
My reasoning is.... I usually have them in my sleep or.. upon waking. I have only had a couple during the day working. So we shall see.Posted 06-16-2009 at 11:12 PM by MsVickie
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